The Congenital Heart Information Network, a 501(c)3 
organization created by the mother of a child with complex heart defects, provides reliable information, support services and resources to families of children with congenital defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. Additional services include financial assistance to families in crisis, funding for local affiliated support groups, and sponsorship of an international CHD Awareness Campaign. With the guidance of a medical Advisory Panel, they maintain a commitment to providing resources that are accurate and reliable.
organization created by the mother of a child with complex heart defects, provides reliable information, support services and resources to families of children with congenital defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them. Additional services include financial assistance to families in crisis, funding for local affiliated support groups, and sponsorship of an international CHD Awareness Campaign. With the guidance of a medical Advisory Panel, they maintain a commitment to providing resources that are accurate and reliable.
CHD Awareness Week 2011
A mother and daughter's journey and their mission
to learn and create awareness of CHD.
Camp Oki is Canada's first and only Summer Camp for children with congenital heart disease, including those with pacemakers, internal defibrillators and transplants. Created by SickKids cardiologist Dr Joel Kirsh, the free camp launched in 2004 with 30 kids over a long weekend and now hosts 60 campers over one week. Camp Oki's volunteer counselors are SickKids staff and former campers and they are able to provide a fun, safe and enjoyable recreational opportunity for children who are often excluded from mainstream summer camping programs.
The Congenital Heart Information Network story reflects the courage, compassion, and commitment of one international community of The "online" families and dedicated medical professionals, who have maximized the interactive capabilities of the Internet to educate, inform, and connect people with one another in a very positive way.
1 comment:
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